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Last Post 03/01/2019 04:50 PM by Evan Solida. 16 Replies.
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Cosmic Kid

Posts:2797

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02/12/2019 04:52 PM
Can you find them?

https://www.velonews.com/2019/02/bikes-and-tech/technical-faq-more-on-riding-while-on-blood-thinners_483416
Just say "NO!" to WCP!!!!
longslowdistance

Posts:1836

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02/12/2019 05:34 PM
Thanks for the link. I recognized two names, at least maybe. Excellent thread from a medical point of view, with informed and intelligent responses.
Dale

Posts:1184

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02/12/2019 08:44 PM
Blood brothers

I wrecked hard a few years ago at CX Nats in Asheville and had the most bodacious bruise on my thigh and going up my backside to my mid back. It happened but no pics... you wouldn't want to see but it did underscore the fact about bruising while on Warfarin. I took some Tylenol that I later discovered multiplies the anti-clotting of Warfarin in some people so the bruising was magnified.
Orange Crush

Posts:2551

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02/12/2019 09:08 PM
As it happens I also made a contribution to the interwebs this week

https://pjammcycling.com/climb/1250.Apex-from-Hedley
Cosmic Kid

Posts:2797

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02/12/2019 09:40 PM
Posted By Dale Dale on 02/12/2019 08:44 PM
Blood brothers

I wrecked hard a few years ago at CX Nats in Asheville and had the most bodacious bruise on my thigh and going up my backside to my mid back. It happened but no pics... you wouldn't want to see but it did underscore the fact about bruising while on Warfarin. I took some Tylenol that I later discovered multiplies the anti-clotting of Warfarin in some people so the bruising was magnified.


Got nipped by a dog this fall on a run...got me on my lower hammy and upper calf. Just a couple of small puncture would that barely even bled...small trickle. But over the next couple of days it bruised up like a mo-fo. First time I have ever had any bruising issues on warfarin.
Just say "NO!" to WCP!!!!
mondonico

Posts:68

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02/24/2019 01:27 PM
As always last to post but used warfarin for a little while. Ended up in hospital for a day with a 9.4 INR testing getting vit. K IV. I was bleeding internally and had a hematoma on my thigh that lasted weeks. Bruises that would not go away. I was lucky I did not do anything serious.
Dale

Posts:1184

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02/24/2019 03:23 PM
9.4! ...dayum...
Cosmic Kid

Posts:2797

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02/24/2019 10:40 PM
9.4!?!?!?! Holy schitt!!

I got up to 5.6 once but saw blood in my urine so got it squared away pretty quickly. Cwn’t Imagine 9.4.
Just say "NO!" to WCP!!!!
mondonico

Posts:68

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02/25/2019 11:56 AM
Went to urgent care in the afternoon when things seemed to be going off the rails. Got a call at two in the morning from on call DR. telling me to go to ER ASAP and they would be ready for me. Not really ready but got in pretty quick. Went to one of the other blood thinners and now am off. Just don't trust them at all.
smokey52

Posts:288

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02/25/2019 09:07 PM
The wife had a saddle PE, the kind usually found on autopsy. After heparin and changeover to coumadin with hourly then four-hourly INR checks, she was discharged after being deemed stable. After a week, her INR was in the high nines. The hematologist got us on the cell phone (we were at the pharmacy trying to fill an Rx) and told us to get to the ER where they pumped platelets into her. She's tried the two newer meds, Eliquis and Xarelto, but developed hives, so she's stuck with the warfarin. At least she got the home-use INR system and can check her own INR weekly. She's been stable for the last couple of years.
Dale

Posts:1184

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02/25/2019 09:31 PM
I want to get an in-home INR machine but so far the cost has been untenable.
smokey52

Posts:288

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02/25/2019 09:43 PM
Dale,
Does your insurance plan have an advocate? If so, you can ask them for the best approach to make it affordable. Because of my wife's MS disability, her primary insurance is Medicare, which covers the cost of the in-home unit.
In our experience, the health insurance advocates really give advice to your best interest. They know the systems and how best to work them to your advantage to get what you are actually entitled to. It's not gaming the system.
smokey
79pmooney

Posts:2149

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02/26/2019 01:43 PM
Smokey - cool hearing someone I (almost) know benefiting from platelets. I donated them for decades until my arms started saying "no more needles". About 80 donations, most using both arms. I loved doing it. In the early days, the nurses drawing our blood were drawing frequently from immediate family as platelet typing was then pretty crude and the donor base, tiny. They also developed strong bonds with donors because the ratio was 1:1 donor-nurse and we were on the machines for 2 hours. (If we needed anything, they had to do it for us. Put the cookies or juice in our mouths, adjust our clothes. Not much you can do with two arms you cannot bend for two hours.) The Boston Red Cross had 4 nurses, three machines and us regulars came in every two weeks. It was special.

Several times I was informed I was a match for a donor and would I do my best to stay healthy? I would get regular updates on their progress; even being told their name and hospital room and that IU was welcome to visit. I never did, but just walking through like knowing it really mattered was both an obligation and honor.

They learned about my head injury. I got a very warm welcome when I came back. (I don't know how they knew but I was such a regular I suspect they did some sleuthing when I disappeared. I think but don't remember that one of them visited me at Mass General.)

Over the decades later during my dark ages, the experience of donating and especially knowing I was paired with patients may well have saved my life. There were activities I did not engage in only because it would disqualify me from giving blood/platelets for a year if I was honest and that was one place I could not lie.

So, Smokey, your wife did not get my platelets. I've only donated a couple of time since 2001 when Portland's best nurse with a needle told me after donating whole blood that my veins were shot; that I should stop. (She was drawing my blood because I always called in advance and asked for the best; that I had a lot of scar tissue. If they hit it and hesitated, I'd be sore for 10 days. To keep needles to a minimum, I donated both platelets and whole blood, 5 donations of each/year with a week or two between the platelets then the whole blood. Red Cross loved my platelet counts and I'm a second rarest B-.)

Best award I've ever gotten - I am on the Tree of Life in Seattle as a 100 unit donor. I used to get an invitation to their annual thank you banquet. I finally drove up from Portland to attend it. Listened to a 19 yo woman thank us for the 18 units of blood she needed to get through a heart transplant. I was in tears.

Smokey, give your wife a hug for me. The two of you just made my day.

Ben
Cosmic Kid

Posts:2797

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02/26/2019 02:36 PM
Posted By Dale Dale on 02/25/2019 09:31 PM
I want to get an in-home INR machine but so far the cost has been untenable.


I have the Coagucheck system (which my insurance covered), but it seems there are now questions about its accuracy. Looked into other systems and, as noted, they were cost-prohibitive.
Just say "NO!" to WCP!!!!
smokey52

Posts:288

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02/27/2019 05:42 AM
Ben: well done!
CK: My wife has the CoaguCheck as well, but she also has a standing order from her hematologist at the local lab service for a blood draw and lab determination, so she gets another check intermittently. So far the results have matched pretty well.
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